forget the meds - i want to marry google
we have been burning up the phone wires between my sister, my mom and me, working on information about multiple sclerosis and about adoptees getting access to their birth records in their state. between my mom and me, my sister is armed and dangerous! my sister had a 99% positive diagnosis of ms today, with more tests to follow in the next week. this afternoon, she sounded the best she's sounded in weeks; she's just so relieved to have something pinpointed, something that can actually be treated. for me, the silver lining of this situation is that it's given me to something about which to obsess other than little z. and unlike little z, i can do something to help my sister. i've given her peace of mind about the prognosis (50 year life expectancy from the onset!), and helped her understand what to expect in the testing, and i've located the attorney that arranged her adoption 29 1/2 years ago and then shortly thereafter moved from the southeast to the west - but no one could remember where. i fucking love google.
*****
i haven't decided whether to push for an ultrasound before my next check-up. if my symptoms-o-pregnancy are any indicator, z is positively ripe (you should smell me, how incredibly fecund i smell. i am the walking olfactory definition of the word "fecund".)
on the one hand, it would give me great peace of mind to know it if z is doing better than last week. also, if he's not, it would be better to have a d&c sooner, when we'd be more likely to get an answer from the biopsy, rather than later, by which time there may be too much deterioration to find any answers.
on the other hand, it would feel fantastic to be all zen about it, to accept that what is, is, to not expend any energy pushing for something that will not affect z's chances at all - to have the kind of faith that much of the rest of the planet seems to have. and as nervouskitty pointed out, a pre-u/s checkup may not be a waste, if the heartbeat can be detected.
maybe i'll call my ob monday.
*****
i haven't decided whether to push for an ultrasound before my next check-up. if my symptoms-o-pregnancy are any indicator, z is positively ripe (you should smell me, how incredibly fecund i smell. i am the walking olfactory definition of the word "fecund".)
on the one hand, it would give me great peace of mind to know it if z is doing better than last week. also, if he's not, it would be better to have a d&c sooner, when we'd be more likely to get an answer from the biopsy, rather than later, by which time there may be too much deterioration to find any answers.
on the other hand, it would feel fantastic to be all zen about it, to accept that what is, is, to not expend any energy pushing for something that will not affect z's chances at all - to have the kind of faith that much of the rest of the planet seems to have. and as nervouskitty pointed out, a pre-u/s checkup may not be a waste, if the heartbeat can be detected.
maybe i'll call my ob monday.
posted by laura at 5:40 PM
4 Comments:
I'm really sorry about your sister. MS is tough, but you are right it is something that you can live with for a long time. We have a couple of close family friend with MS and it is a big struggle, but they do it and they have good lives in so many ways.
No advice on little z, just sending a lot of growing healthily vibes her/his way. And in the category of things you never thought you'd say to someone: hope you stay smelly!
get the doppler
get the doppler
get the doppler
get the doppler
get the doppler
It sound like your sister is lucky to have the family he has:)Does she know about Z? I bet that will be a wonderful boost to her as well.
From the way you have described your sister over time, I imagine she will be one of those who constantly astounds with her strength, grace and success in the face of this life long challenge.
I'm wishing your family well in struggling forward with everything her illness involves.
I would ask for the ultrasound. It makes sense to closely monitor the growth/heartrate when there are concerns. I also think that for someone who has gone through as much as you have, the less guessing games you have to play the better.
My gosh, Laura, so many heavy things going on in your life. Please know that I am thinking of you, Justin, z, and sis.
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